The Official Patient's Sourcebook on Marfan Syndrome Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. This reflects the fact that the sour
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| Title | : | The Official Patient's Sourcebook on Marfan Syndrome |
| Author | : | |
| Rating | : | 4.66 (874 Votes) |
| Asin | : | 059783170X |
| Format Type | : | Paperback |
| Number of Pages | : | 192 Pages |
| Publish Date | : | 2002-06-14 |
| Genre | : |
Editorial : From the Publisher This is a "must have" reference book for patients, parents, caregivers, and libraries with medical collections. This sourcebook is organized into three parts. Part I explores basic techniques to researching marfan syndrome (e.g. finding guidelines on diagnosis, treatments, and prognosis), followed by a number of topics, including information on how to get in touch with organizations, associations, or other patient networks dedicated to marfan syndrome. It also gives you sources of information that can help you find a doctor in your local area specializing in treating marfan syndrome. Collectively, the material presented in Part I is a complete primer on basic research topics for patients with marfan syndrome. Part II moves on to advanced research dedicated to marfan syndrome. Part II is intended for those willing to invest many hours of hard work and study. It is here that we direct you to the latest scientific and applied research on marfan syndrome. When possible,
This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to marfan syndrome (also Arachnodactyly; Contractural Arachnodactyly; Dolichostenomelia; Marfanoid Hypermobility Syndrome; Marfan's syndrome), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on marfan syndrome. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Wher
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